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Full Answer
How do I link seer with Medicare data?
To link SEER with Medicare data, the registries participating in the SEER program send individual identifiers for all persons in their files. These identifiers are matched with identifiers contained in Medicare's master enrollment file. The linkage was first completed in 1991 and has subsequently been updated, most recently, every two years.
How do I get access to my SEER data?
A signed SEER Research Data Agreement form is required to access the SEER data. When you submit a request for access to the data, a personalized SEER Research Data Agreement will be created for you. The SEER program will process your request within 2 business days of receiving your signed agreement.
Can I purchase seer-Medicare data?
All requests for SEER-Medicare data must be reviewed and approved before any data can be purchased. NOTE: There is increased interest in using SEER-Medicare data for mapping of cancer incidence, treatment, and survival.
How do I apply for seer-Medicaid data?
The application packet must include a letter from the funder indicating that you are free to work and publish your findings without limitations by the funder. This letter must be on company letterhead. All requests for SEER-Medicaid data must be reviewed and approved before any data can be purchased.
How do I request SEER data?
Step 1: Apply for Research Plus Data AccessLog into the Data Request System with your Institutional account.Complete the application form.Acknowledge the following: SEER Research Data Use Agreement. SEER Treatment Data Limitations. Best Practices Assurance.Submit the form.
What states are SEER States?
About SEER For nine registries (Kentucky, Greater California, Utah, Louisiana, Georgia, New York, Massachusetts, Wisconsin, and Idaho), NCI funds are combined with funding from the Centers for Disease Control and Prevention (CDC) through the National Program of Cancer Registries and with funding from the states.
What is SEER Medicare data?
The SEER-Medicare data reflect the linkage of two large population-based sources of data that provide detailed information about Medicare beneficiaries with cancer. The data come from the Surveillance, Epidemiology and End Results (SEER)
What is SEER healthcare?
NCI's Surveillance, Epidemiology, and End Results (SEER) program provides information on cancer statistics that underpins efforts to reduce the cancer burden among the U.S. population.
Is SEER a public health surveillance system?
SEER is an authoritative source for cancer statistics in the United States. The Surveillance, Epidemiology, and End Results (SEER) Program provides information on cancer statistics in an effort to reduce the cancer burden among the U.S. population.
Who reports to SEER?
Updated annually and provided as a public service in print and electronic formats, SEER data are used by thousands of researchers, clinicians, public health officials, legislators, policymakers, community groups, and the public.
Who funds Naaccr?
the National Cancer Institute (NCI)The project is coordinated by the North American Association of Central Cancer Registries (NAACCR) and funded by the National Cancer Institute (NCI).
What information does SEER collect?
Relevant data include cancer incidence and mortality (including cancer type, tumor site, tumor morphology, and stage at diagnosis, first course of treatment, and follow-up for vital status), demographic information, and state and county.
Does SEER include data from all 50 states?
Together, CDC's NPCR and NCI's SEER Program cover the entire United States population. These combined data are the official source of federal statistics on cancer incidence and are referred to as the U.S Cancer Statistics.
What are SEER stages?
The SCCCR uses the SEER General Summary Staging System. This system includes five stages: in situ, localized, regional, distant, and unstaged. In situ and localized are classified as "early stage." Regional and distant are considered "late stage." Cancers diagnosed as in situ are considered pre-invasive.
For Institutional Account Holders
Obtain access through an eRA Commons account if you are affiliated with an organization (examples include students and researchers at domestic and international universities, for-profit and not-for-profit company employees, and state government employees).
Specialized Databases
You must already have access to Research Plus data with a valid Institutional Account before you can submit a proposal for review to apply for the access to one of the specialized databases. A separate application is needed to access each specialized database. Refer to the list of Specialized Databases for more information.
Who is responsible for monitoring and controlling access to SEER-Medicare linked data?
Principal Investigators are responsible for monitoring / controlling all access to the SEER-Medicare linked data In the case of students and fellows, the department chair or advisor from the student's academic institution must sign the DUA and submit the application as the Principal Investigator .
What is the letter required to be included in a SEER application?
The application packet must include a letter from the funder indicating that you are free to work and publish your findings without limitations by the funder. This letter must be on company letterhead. All requests for SEER-Medicare data must be reviewed and approved before any data can be purchased.
How long does it take to get a SEER registry?
The registry review can take at least 8-10 weeks. The SEER-Medicare contact will follow up with each registry until the review is complete. When the application is fully approved, IMS (NCI's programming contractor) will contact investigators to ensure they obtain all the data files needed for the analysis.
How long does it take to get a second review?
Once the initial review team is satisfied with the application, it is sent to the second review team. This process can take at least 6-8 weeks. If the application includes a request for access to the restricted variables, the second review will be done by each registry.
When do you have to submit a new application for a federal investigation?
In order to add files and/or file years to an application approved prior to 2020, investigators will be required to submit a new application with all the required documentation. If approved, investigators will have to purchase all new files and destroy all previously received data.
Is cloud storage acceptable for SEER?
Cloud Storage services do not meet privacy rules and are not acceptable for the storage of SEER-Medicare data. Institutional Review Board (IRB) approval. Please provide documentation of the determination of the Institutional Review Board (IRB) of your local institution.
Can SEER-Medicare be linked to previous data?
Investigators cannot request addition files from previous data releases nor can they combine previously released file years with files released in 2020.
Announcements
An updated version of the Comorbidity macro is now available that incorporates ICD-10 codes.
Programming Support
Researchers often have questions about the SEER-Medicare data or need help before or during an analysis. You may find the materials provided here to be helpful as you conduct your analyses.
Privacy & Confidentiality Issues
NCI, the Centers for Medicare & Medicaid Services, and the SEER staff have great appreciation for the potentially sensitive nature of data about persons with cancer and the need to respect the privacy of patients and providers included in the SEER-Medicare data.
SEER-Medicare Linked Database
The SEER-Medicare data reflect the linkage of two large population-based sources of data that provide detailed information about elderly persons with cancer, which can be used for an array of epidemiological and health services research.
SEER-Medicare Health Outcomes Survey Linked Database
The SEER-MHOS database links two large population-based sources of data that provide detailed information about elderly persons with cancer.
SEER-Consumer Assessment of Healthcare Providers and Systems (SEER-CAHPS) Linked Data Resource
The SEER-CAHPS data set links 3 types of data: clinical (SEER), survey (CAHPS), and administrative/billing (Medicare claims and enrollment files). The data are linked through the collaborative efforts of NCI, the SEER registries, and CMS.
Instructions for submitting an application
Release of SEER-Medicaid data is project specific. You must have an approved application in order to access these files.
SEER Registries
NCI supports the SEER registries in their use of SEER-Medicaid data for registry-conducted projects. Registry-conducted projects include use of SEER-Medicaid data to assess the completeness of registry data or research analyses conducted by registry staff.
Approval & Processing Time
Applications for SEER-Medicaid linked data are reviewed by two separate groups, consecutively. The initial review team may provide questions /comments on the project, which will require a response and revision by the investigator. Once the initial review team is satisfied with the application, it is sent to the second review team.
What is SEER data?
The linkage of the SEER-Medicare data is a collaborative effort of the NCI, the SEER registries, and the Centers for Medicare & Medicaid Services (CMS). NCI and CMS perform the linkage of persons in SEER to their Medicare claims. Investigators seeking to use the data are not involved in or responsible for the linkage .
How often is the Medicare linkage updated?
The linkage was first completed in 1991 and has subsequently been updated, most recently, every two years. For each linkage update, approximately 95 percent of persons age 65 and older in the SEER files were matched to the Medicare enrollment file. NCI and CMS plan to continue updating the SEER-Medicare linkage every two years.
Who creates SEER-Medicare data files?
The SEER-Medicare data files are created by Information Management Services, Inc. (IMS), the information technology contractor for NCI. Outside researchers are asked to reimburse IMS for the cost of producing the data, as listed below.
What happens if you order multiple cancer sites?
If multiple cancer sites are ordered, the cost of the cancer files is multiplied depending on the sites requested. You will be charged for one cancer site for each of the following cancers: Breast, Lung, Colorectal, and.
Who is the signatory official for SEER?
The Signing Official is the person who has the legal authority for the institution's assurance of the terms of the SEER Research Data Use Agreement. For example, your institute's Provost or Director of Research Affairs could serve as a Signing Official. For eRA Commons account holders, see FAQ #3 for more details.
When does SEER expire?
Your account will expire on April 30, 2021. To continue to use the SEER data, you will need to submit a new request for the latest release which includes the 1975-2018 SEER Research Data (November 2020 Submission), as well as access to the two previous submissions. For detailed instructions, see How to Request Access to SEER Data.
What is a non-institutional SEER stat account?
Non-Institutional Accounts are for people not affiliated with any organization. If you register for a SEER*Stat account with a Non-Institutional email, you will receive access to just the Research data.
What agencies can use PIV cards?
HHS agencies that can use their PIV Cards to request with an institutional account include the Agency for Healthcare Research and Quality (AHRQ), Centers for Disease Control and Prevention (CDC), Centers for Medicare & Medicaid Services (CMS), Food and Drug Administration (FDA), Indian Health Service (IHS), and National Institutes of Health (NIH).
For Institutional Account Holders
For Non-Institutional Users
- If you are not affiliated with an organization, complete these steps to access the Research Data. You cannot request access to the Research Plus data until after access is granted to the Research Data.If you have access to an Institutional Account, you must use it to request the SEER data unless you are requesting the data for personal use (refer t...
Specialized Databases
- You must already have access to Research Plus data with a valid Institutional Account before you can submit a proposal for review to apply for the access to one of the specialized databases. A separate application is needed to access each specialized database. Refer to the list of Specialized Databasesfor more information.
Instructions For Submitting An Application
- Release of SEER-Medicare data is project specific. You must have an approved application in order to access these files. The materials for the application packet should be sent to the SEER-Medicare contactas email attachments. Please submit one application and corresponding documentation per email. The required documents are: 1. Application form (D...
Approval & Processing Time
- Applications for SEER-Medicare linked data are reviewed by two separate groups, consecutively. The initial review team may provide questions /comments on the project, which will require a response and revision by the investigator. Once the initial review team is satisfied with the application, it is sent to the second review team. This process can take at least 6-8 weeks. If the …
Changes to Previously Approved Applications
- Any change to a previous approved application must be approved before any work can begin. Please use the change form (DOCX, 14 KB)to request approval for any change, including changes in data storage.
Request For Additional Data
- The 2020 SEER-Medicare linked data are not compatible with any previously released data. Investigators cannot request addition files from previous data releases nor can they combine previously released file years with files released in 2020. In order to add files and/or file years to an application approved prior to 2020, investigators will be required to submit a new application …